Useful links for navigating Parkinson’s disease*

Keep this list of resources handy. Whether you’re living with Parkinson’s, or caring for someone who is, you can take advantage of the many helpful organizations, associations, and reference tools available.

* AbbVie make no representation, warranty, or endorsement, express or implied, as to any information, services, products, or messages of any third party. AbbVie is not responsible for the information provided by any entity or any further links from its website. AbbVie is providing this information to you only as a convenience and the inclusion of any entity does not imply the endorsement of that entity by AbbVie. You should also be aware that the linked site may be governed by its own set of terms and conditions and privacy policy for which AbbVie has no responsibility.

A

American Parkinson Disease Association

800-223-2732

Foundation focused on research, patient services, education, and raising public awareness

American Parkinson Disease Association/Boston University Exercise Helpline

888-606-1688

Toll-free helpline enables callers to speak with a licensed physical therapist who can answer questions about exercise, provide information about programs in the caller’s area, and provide educational materials

B

Brian Grant Foundation

503-274-9382

Foundation focused on empowering people with Parkinson’s to live active and fulfilling lives, with a particular focus on wellness, nutrition, and exercise

C

Consumer Reports: "Guide to get the most out of Medicare"

Explains important considerations in choosing the Medicare plan that works best for you, including choosing prescription coverage

D

Dance for PD™

800-957-1046

Program offering specialized dance classes for people with Parkinson’s to creatively address symptom-specific concerns related to balance, cognition, motor skills, depression, and physical confidence

Davis Phinney Foundation For Parkinson’s

866-358-0285

Foundation focused on supporting programs and research that deliver inspiration, information, and tools that enable people living with Parkinson’s to take more control in managing their disease; publishes free "Every Victory Counts" manual

Delay the Disease

614-566-1189

Fitness program designed to empower people with Parkinson’s disease to take control of the disease through daily exercise

E

Eldercare Locator

800-677-1116

Public service of US Administration on Aging, connecting you to services for older adults and their families

F

Family Caregiver Alliance: National Center on Caregiving

800-445-8106

Organization focused on providing support for families who are caring for loved ones

Fox Trial Finder: The Michael J. Fox Foundation for Parkinson’s Research

Website that matches registrants to the clinical trials best suited to their traits

I

International Essential Tremor Foundation: Assistive Devices

888-387-3667

Information on assistive devices for people with tremors

J

Job Accommodation Network

800-526-7234 (voice), 877-781-9403 (TTY)

Free, expert, and confidential guidance on workplace accommodations and disability employment issues

L

LSVT Global

888-438-5788

Provides treatment for speech communication (LSVT LOUD®) and physical/occupational therapy (LSVT BIG®); offers "Find a Clinician" search to locate certified speech and physical therapists in your area

M

Medicare

800-MEDICARE (800-633-4273)

The official US government site for Medicare

Melvin Weinstein Parkinson’s Foundation

757-313-9729

Not-for-profit organization that raises money to purchase medical equipment and health supplies for Parkinson’s patients to help maintain safe and healthier living environments

The Michael J. Fox Foundation for Parkinson’s Research

800-708-7644

Foundation dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies

The Michael J. Fox Foundation for Parkinson’s Research: Government Benefits and Insurance

Information on government benefits and Medicare therapy caps

The Michael J. Fox Foundation for Parkinson’s Research: Public Policy

Information on the foundation’s advocacy for government policies that accelerate development of Parkinson’s therapies and reduce barriers to care and support services

The Michael J. Fox Foundation for Parkinson’s Research: Third Thursday Webinars on Parkinson’s Research

Information on webinars covering various aspects of living with Parkinson’s and the foundation’s work to speed breakthroughs

N

National Parkinson Foundation (NPF)

800-4PD-INFO (800-473-4636)

Foundation focused on improving the lives of people with Parkinson’s through research, education, and outreach

National Parkinson Foundation: Aware in Care Kit

800-4PD-INFO (800-473-4636)

Free Aware in Care Kit with tools and information to help Parkinson’s patients get the best possible care during a hospital stay

National Parkinson Foundation: CareMAP

800-4PD-INFO (800-473-4636)

Provides practical suggestions for coping with the complex problems that arise from Parkinson’s disease

NeedyMeds

800-503-6897

National nonprofit organization that provides free information on programs that help people who can’t afford medications and healthcare costs, plus assistance programs, free/low-cost/sliding scale clinics, and discount drug coupons

Nutrition U Can Live With

Nutrition website for patients with Parkinson’s disease

P

Parkinson Voice Project

855-707-7325

Nonprofit organization dedicated to preserving the voices of individuals with Parkinson’s through voice therapy, research, education, and community awareness

Parkinson’s Disease: A Guide for Patients and Families Featuring Michael J. Fox

Patient education video featuring Michael J. Fox

Parkinson’s Disease Foundation

800-457-6676

Foundation funding scientific research and providing educational programs and services to support people living with Parkinson’s

Parkinson Wellness Recovery

520-591-5346

Comprehensive neuroplasticity-principled program that integrates the latest research on Parkinson’s disease and rehabilitation, exercise, and wellness

Partners in Parkinson’s

Website for PD education and support, including the following:

Patient Access Network

866-316-7263

Independent organization dedicated to helping underinsured patients living with life-threatening, chronic, and rare diseases get the financial assistance they need

PDAdvocates.com

AbbVie-sponsored Parkinson’s Disease Advocate Program for patients and caregivers

R

Rock Steady Boxing

888-217-0577

Nonprofit organization giving people with Parkinson’s disease hope by improving their quality of life through a noncontact, boxing-based fitness curriculum

S

State Health Insurance Assistance Programs

877-839-2675

Free insurance counseling for Medicare beneficiaries

T

The Assistance Fund

855-845-3663

Independent charitable patient assistance foundation that provides financial assistance for co-pays, coinsurance, deductibles, and other health-related expenses

U

US Department of Health and Human Services Administration for Community Living: Administration on Aging

800-677-1116 or 202-401-4634

Information on local programs, long-term care planning, Medicare, and elder rights protection

US Department of Veterans Affairs: Health Benefits

800-827-1000 or 877-222-VETS (877-222-8387)

Information on how to apply for veterans benefits or update your information

US Department of Veterans Affairs: National PADRECC and VA PD Consortium

215-823-5800

Resources for veterans with Parkinson’s disease, including locations of movement disorder specialists within the VA system

US Equal Employment Opportunity Commission

800-669-4000

Enforces laws that make it illegal to discriminate against people with disabilities

United Way: Local 211 Service

211

Free nationwide service connecting callers with information about local health and human services, including food banks, rent assistance, resources, employment support, and support for older persons and persons with disabilities